This is the easiest method I can think of in order to keep track of Evan's progress using Univera products:
- Ageless Xtra
- Essentials, and
- Aloe Gold [gel]
[see planned regime of dosages, bottom]
- Ageless Xtra
- Essentials, and
- Aloe Gold [gel]
[see planned regime of dosages, bottom]
Evan is severely spastic quadriplegic cerebral palsy, and has epilepsy as well as global development delay. This condition is a result of meningococcal septicemia infection at 7 months old, which triggered cardiac and respiratory arrest causing severe brain damage due to lack of oxygen in his system [to the brain].
He is now 5 years old, wheelchair reliant, and requires assistance for all mobility, hygeine, feeding and leisure activities. But he is a most amazing, beautifully natured, responsive, emotionally aware and loving boy.
He is currently fed via a PEG - a tube direct to his stomach - with a liquid formula that covers his dietary needs, we're told. However, he does enjoy small tastes [2-4 teaspoons] at each mealtime of pureed foods, orally.
Evan has a PEG since September 2009 after assessed by video fluoroscopy as having an 'uncoordinated swallow'; therefore, he is at risk of aspirating fluids and solids, which could cause aspiration pneumonia - possibly death due to an infection of this sort.
Many kids like Evan have reflux and dietary/digestive issues. As parents, we're xhausted by the vomitting and saddened by how it must be for Evan - the discomfort in his throat and stomach must be terrible.
We are open to try new approaches and products, and when Univera came so highly recommended I was happy to give it a go.
This is the daily update on how Evan's body reacts to the dosages of each product over the next few ? weeks? ?months?...we'll see.
Thanks to J for helping us with recommendations.
He is now 5 years old, wheelchair reliant, and requires assistance for all mobility, hygeine, feeding and leisure activities. But he is a most amazing, beautifully natured, responsive, emotionally aware and loving boy.
He is currently fed via a PEG - a tube direct to his stomach - with a liquid formula that covers his dietary needs, we're told. However, he does enjoy small tastes [2-4 teaspoons] at each mealtime of pureed foods, orally.
Evan has a PEG since September 2009 after assessed by video fluoroscopy as having an 'uncoordinated swallow'; therefore, he is at risk of aspirating fluids and solids, which could cause aspiration pneumonia - possibly death due to an infection of this sort.
Many kids like Evan have reflux and dietary/digestive issues. As parents, we're xhausted by the vomitting and saddened by how it must be for Evan - the discomfort in his throat and stomach must be terrible.
We are open to try new approaches and products, and when Univera came so highly recommended I was happy to give it a go.
This is the daily update on how Evan's body reacts to the dosages of each product over the next few ? weeks? ?months?...we'll see.
Thanks to J for helping us with recommendations.
No comments:
Post a Comment